Rare Disease Day is the globally-coordinated movement on rare diseases, working towards equity in social opportunity, healthcare, and access to diagnosis and therapies for people living with a rare disease.
CONGENITAL HEART DEFECT AWARENESS WEEK Every year Congenital Heart Defect Awareness Week promotes awareness and provides education about congenital heart defects. Congenital heart defects (CHD) are the most common birth defect. Nearly 1 in 100 babies are born with a heart defect. On a global level, about 1.35 million babies are born each year with CHD. Despite its prevalence, CHD research is underfunded due to a lack of public recognition. Canadians Sharing Locally and Globally supports research in India for CHD.